Why does language matter when we talk about diabetes?
Have you ever been on the wrong side of a conversation at a clinic or a hospital, where the language used to describe you sounded critical, judgmental, and even depersonalizing? Me, too. I have been called a diabetic many times. At some point, you start asking yourself, since when did my full identity become a diabetic patient instead of a person living with diabetes. I live with diabetes; diabetes does not define me.
There are many examples of how words carry power. Perhaps you saw the website that referred to diabetic feet. I wondered if my feet were diabetic, too. If you see this online, you are more likely to skip to the next website in your search results. But in a clinical setting, you might seek out another health care team altogether. On the other hand, you could decide to stick with your current team and help them understand that when it comes to diabetes, language matters!
Words are powerful tools that health care providers can use to either empower people living with diabetes or demotivate them.
As a person living with diabetes, my diagnosis does not define me. I have lived with diabetes for over 30 years, so I can honestly say that it can be overwhelming at times. Like many chronic diseases, diabetes affects every aspect of my daily routine. However, I am more than my condition, and the language used should reflect that.
Trying to remove the use of disempowering language, particularly from the health care system lexicon, has been a battle that many people living with diabetes have been fighting for many years. However, this struggle is not confined to the diabetes community. Proof of this can be seen in the Global Down Syndrome Foundation’s campaign Words Can Hurt1, a campaign helping to highlight labels that are considered hurtful and dehumanizing.
In 2011, Diabetes Australia, Australia’s national diabetes organization, published a position statement entitled, A New Language for Diabetes. Their aim was to encourage greater awareness of the language surrounding diabetes. In fact, Diabetes Australia “believes that optimal communication increases motivation, health, and the well-being of people with diabetes.”2 In 2017, the American Association of Diabetes Educators (AADE) published Speaking the Language of Diabetes3. The publication provided many opportunities to increase awareness of the way health care professionals talk to (and about) people living with diabetes and their psychosocial well-being. In their 2017 publication, The Use of Language in Diabetes Care and Education4, Dickinson and colleagues proposed four guiding principles for talking about diabetes:
As a person living with diabetes, a mother of a child living with diabetes, and as a diabetes educator, I believe it is time to educate health professionals on the need to use language that promotes empowerment and respect. I would like to conclude by quoting Dickinson again, “In fact, the time has come to reflect on the language of diabetes and share insights with others. Messages of strength and hope will signify progress toward the goals of eradicating stigma and considering people first.”5
The findings and conclusions in this publication are those of the author(s) and do not necessarily represent the official position of the Centers for Disease Control and Prevention.
What we would like to hear from you in this discussion:
Word suggestions for media to replace language with potential negative connotations: https://www.diabeteseducator.org/docs/default-source/practice/educator-tools/diabetes-language-media-guide.pdf?sfvrsn=0
Preferred words-language guidance for diabetes related research, education and publications: https://www.diabeteseducator.org/docs/default-source/practice/educator-tools/HCP-diabetes-language-guidance.pdf?sfvrsn=8
AADE webpage about What You Say Matters https://www.diabeteseducator.org/practice/educator-tools/diabetes-language-paper?utm_source=Internal&utm_medium=MAST&utm_campaign=LanguageGuide
Dickinson, J., Guzman, S., Maryniuk, M., O’Brian, C., Kadohiro, J., & Jackson, R. et al. (2017). The Use of Language in Diabetes Care and Education. Retrieved from https://www.diabeteseducator.org/practice/educator-tools/diabetes-language-paper
Diabetes Australia Position statement https://static.diabetesaustralia.com.au/s/fileassets/diabetes-australia/f4346fcb-511d-4500-9cd1-8a13068d5260.pdf
Other Resource from Diabetes Australia http://www.dawnstudy.com/content/dam/Dawnstudy/AFFILIATE/www-dawnstudy-com/Home/DAWN2/Documents/ACBRD-Position-statement-A-new-language-for-diabetes-Improving-communications-with-and-about-people-with-diabetes-Australia.pdf
Information about the discussion leader
Betsy Rodríguez, RN, MSN, CDE is a nurse, diabetes educator, national and international speaker on diabetes-related topics, bicultural specialist in health communication strategies, and author, presently serves as a Senior Public Health Advisor in the Translation Health Education and Evaluation Branch in the Division of Diabetes Translation (DDT) at the Centers for Disease Control and Prevention (CDC). At CDC, Mrs. Rodriguez provides technical assistance and support to state grantees, national diabetes-related professional organizations, such as the American Diabetes Association (ADA) and the American Association of Diabetes Educators (AADE), as well as community-based organizations. At the international level, Mrs. Rodriguez provides technical assistance and support to the International Diabetes Federation, IDF SACA Region.